This topic has been of interest to me for many years after countess families have shared that they were not given any support, resources, counseling, or even a hug, or “I’m so sorry that your child died in our care. What can we do to help you?”
I need names and examples of facilities that are providing a “safety net” for families facing trauma, either death or diagnosis, to support bad news.
Pediatricians have asked me to write about what the emotional and physical impacts are on a family following a child’s death so that they can understand better, to help families more. Little has been written on this topic. I would also like to give examples in the article about how hospitals are improving care and aftercare for children and families. What resources are you offering?
Please respond to this post or email me about what your hospital is doing to help families traumatized by illness or death. The ideas will be listed to help others not as far along on the compassionate care journey. email@example.com Thank you!
PFCC VisionQuest is an interactive workshop that will immerse all care givers (defined as anyone who “touches” the patient and family experience in any way) in the PFCC Methodology and Practice (PFCC M/P) – the one tool that enables you to achieve the PFCC Trifecta of improved outcomes and experiences while reducing costs. By viewing all care through the eyes of patients and families, care givers will generate the urgency to drive change. Care givers will learn how to deliver value as determined by patients and families, form partnerships and engage all in the co-design of care experiences. Be a catalyst for change and join us for the 2014 PFCC VisionQuest.
What will it take for hospitals to be the best run organizations on the face of the planet?
Great post by my friend and colleague, Jason A. Wolf, about People, Process, Place and Purpose!
Jason A. Wolf, Ph.D., is president of The Beryl Institute, where he specializes in organizational effectiveness, service excellence and high performance in healthcare. Follow Jason @jasonawolf and The Beryl Institute @berylinstitute on Twitter.
As a part of its measure development process, CMS may request interested parties to submit candidate measures that may be suitable for a specific project. The candidate measures suggested will be reviewed by CMS and its measure development contractor(s). Candidate measures suggested through a call for candidate measures will undergo the same rigorous evaluation as all CMS measures.
The CMS measures development process consists of the following steps:
Identifying important quality goals related to Medicare services
Conducting literature reviews and grading evidence
Defining and developing specifications for each quality measure
Obtaining evaluation of proposed measures by technical expert panels
Soliciting public comment on proposed measures
Testing measures for validity, reliability, ease, and accuracy of collection
I’m completing research with a psychologist, physician, grief counselors, clergy and a health journalist regarding the emotional and physical impact the death of a child has on the parents and siblings. Through my work with patient safety and support group services, I’ve encountered thousands of parents/siblings grieving the loss of a child at all ages by all causes.
Actually, there is little written on the topic because of the severity of the wound. We don’t want to talk about the depth of the pain with others. We talk openly in support groups because they know the pain themselves but little is written about what is shared there. It’s confidential.
The death of a child, due to medical harm, has added repercussions, such as the loss of trust in medicine and reliving the pain at every single medical encounter with every single family member.
Would love parents and families to add more responses to this survey to help others through this journey by sharing their input. Physicians want to know how to help us more. They don’t know what they don’t know…unless we tell them. My local “Compassionate Friends” support group will be assisting on this project.
Little evidence exists for pediatric prevention standards for the hospital acquired conditions (HACs) that are the focus of the network. Over the past two years, SPS has developed standard definitions for pediatric HACs based on those used for adult HACs by using a participatory approach led by pediatric safety experts. SPS network hospitals rapidly adopted these standard definitions and have come together to develop evidence-based bundles in care delivery for each HAC. The SPS network is working with hospitals to spread and implement these bundles in care delivery in order to accelerate the pace of harm reduction.
Regardless of the varied discourse and unexpected turns, a common thread identified by the CARe team in all meetings was the sense that communicating and being transparent was the right thing to do for the patient, family member and caregivers…