Justin's HOPE healthcare blog
Justin's HOPE Project at The Task Force For Global Health
CONTACT INFO: Dale Ann Micalizzi Founder/Director of Justin's HOPE Project at the Task Force for Global Health (Child Survival and Development). Dale is an internationally known pioneer in the patient safety and transparency in healthcare movement.
The vision for the Justin's HOPE project is to promote quality, safe, compassionate, patient and family centered healthcare and resolution of issues around medical errors through full disclosure.
Healthcare advocacy and education in loving memory of our precious child, Justin, who died at the age of 11 following a "simple" ankle procedure.
Contact us for healthcare improvement collaboratives, consulting, interviews, partnerships, articles, speaking requests, Hospital Grand Rounds, Medical School, c-suite and staff training-questions and comments welcome.
Justin's HOPE Project Office 518-588-6448
Justin's HOPE Faculty:
Dale Ann Micalizzi Founder/Director:
Andrea Ricciardelli MS, IATP/CCTP Assistant Director
Justin's HOPE is a Task Force for Global Health Project!
Heartfelt gratitude to our sponsors, donors and supporters who help us educate and save childrens lives!
DONATIONS and HONORARIUMS to support our project are appreciated! Mail to: Justin's HOPE Project at The Task Force for Global Health 325 Swanton Way, Decatur, Georgia 30030 (or click here to donate on line) A 501 (c) (3) tax-exempt organization.
Justin's HOPE Project Annual Report/ 501 (c) (3) tax-exempt organization.
Amazon Smile-Donate to The Task Force for Global Health (Justin's HOPE Project )as your charity when ordering from Amazon GE will match their employees' donations to Justin's HOPE Project at The Task Force for Global Health. Thank you GE!
Thank you for donating to the Task Force for Global Health, a US-based non profit 501 (c) (3) organization. Your contribution, whether to the Task Force, our Capital Campaign, or in support of a specific initiative, is tax-deductible as allowed by law. The Task Force for Global Health, through its program and project activities, provides resources, builds coalitions, and forges consensus necessary to improve global health.Your donation supports our work to improve the health of millions of underserved people and families around the world. We thank you and sincerely appreciate your generous support.
"Dearest Dale, All over the world, your love for Justin burns brightly and fills hearts and lives with hope for a safer future. Our thoughts and love are with you. Arohanui." ~ Marie Bismark
"On a personal note, your heartfelt commitment and tireless dedication to the world of enhancing patient safety is a profound source of inspiration for me. Patients, families and providers are blessed to benefit from your courage, clarity of vision, powerful voice and fearless leadership. What an invaluable legacy Justin's life has gifted to this world -- may his memory, and the healing power of your life's work, bring much blessing always."~Lisa
Join our Facebook Group: Compassion in Healthcare-The Heart of Healing (Creator) @JustinHOPE
OUR RECENT HEALTH EDUCATION PROJECTS:
NEW Justin's HOPE Project video to share with your staff and medical students. *Thanks to filmworks109 for their professionalism and excellence!
New Survey Initiative to Improve Pediatric Patient Safety Internationally! Please complete and share. PFPSC Safety Net Newsletter, "Bridging People and Places in Pediatrics" CPSI-ICSP 2014. Children's Hospitals Solutions for Patient Safety Dale Ann Micalizzi's commentary included in Don Berwick's new book, Promising Care: How We Can Rescue Health Care by Improving It.
PIPSQC Ambassadors and PIPSQC Speakers Dr. Marie Bismark and Dale Ann Micalizzi's chapter in Pediatric Clinics of North America, The Heart of Health Care: Parents' Perspectives on Patient Safety NY One&Only Safe Injection Practices work group patient safety advisor
Grand Rounds Presentation at Arkansas Children's Hospital 2012 IHI Forum Faculty Leadership Response to a Sentinel Event: Respectful, Effective Crisis Management #IHI What happens when things go wrong? (Pediatric Anesthesia 2011)
Informed choice: The meeting point of law,
medicine, and person-centred care Checklists to Improve Patient Safety June 2013 The Beryl Institute: Improving the Patient Experience. The Beryl Institute Global Patient & Family Advisory Council 100k Children: A campaign to improve medical imaging for our nation's children Patient Safety and the "Just Culture" by David Marx JD CMS Partnership for Patients HEN advisor RCA: Engaging Patients and Families in Root Cause Analysis of Sentinel Health Care Events 2012 and PSQH: The Story of Justin Micalizzi Improving Health Care Quality by Don Berwick Respectful Management of Serious Clinical Adverse Events (IHI Partner/Advisor) Action against Medical Accidents A promise to learn
– a commitment to act Considerations in the Disclosure of Serious Clinical Adverse Events The letter that took me ten years to write
Justin's last 6th grade photo (2001)
Justin's HOPE Project will focus on Healthcare Openness, Professionalism and Excellence via education, research and reform. Thank you for believing in our mission at Justin’s HOPE Project!
Patient & family advisors work in a variety of healthcare settings sharing their personal stories to represent all patients & families in providing an educated perspective of care by bringing authenticity, empowerment, respect and inspiration to the design and delivery of healthcare systems. Patient & Family Advisor roles include partner, educator, speaker, listener, advocate, collaborator and leader, ensuring the focus of healthcare is centered on the patient & the family.
*Collaboratively written by the patient & family advisors in attendance at the IHI Forum, 2012
Our PIPSQC Faculty Presentations "Making Health Care Safer for Children."
PIPSQC Forum Faculty
My 2011 IHI Forum Presentation Our PIPSQC Faculty at the 2013 IHI Forum presenting mini course on "Protecting Children from Harm" are Jonny, Peter, Matt, Dale & Vieve
IHI Forum Co-chair Dale Ann Micalizzi and Dr. Don Berwick at the IHI Faculty Reception 2011
The Power of HOPE in Heathcare
HEALTHCARE SCHOLARSHIP OPPORTUNITY: Apply for Justin's 2014 Institute for Healthcare Improvement National Forum Scholarships-application available in June 2014 (funds permitting)
Please meet our JUSTIN MICALIZZI INSTITUTE FOR HEALTHCARE IMPROVEMENT #IHI NATIONAL FORUM SCHOLARSHIP WINNERS:
2013-Crystal Loucel, Cody Mullen and Kim Ferguson.
2012-Lesley Thembelani Bhebhe, Chris Espersen and Anita Gupta.
2011- Nora Dackiewicz, Rachel Wang and Kelly B. Garrison.
2010- Paul Trani, Carolyn Phelps Kergosien, Munashe Kaseke and Acklema Mohammad.
2009- Kelly O’Connor,
Thomas Spain and Margaret Coit.
2008- Tamara Bavousett, Meredith Perry and Lori Montagna.
After 4 days of non-stop learning labs, mini courses and conferences we always save time to celebrate the knowledge that we've gained, the work that we've accomplished and the lives that we've saved by being a part of this project!
Justin's 2013 IHI Scholarship celebration dinner! Justin's 2012 IHI Scholarship celebration dinner! Justin's 2011 IHI Scholarship celebration dinner with project supporter Dr. Bruce Ramshaw! Justin's 2010 IHI Scholarship celebration dinner with project supporters Drs. JoEllen Koerner and Tricia Pil!
Justin's 2008-2010 IHI Scholarship winners
HEALTH EDUCATION RESOURCES to help you save lives from harm, to educate and to heal:
IHI Patient Safety/Quality Resources Online Learning WHO London Declaration Achieving a safe culture: theory and practice by J. Reason Personalizing Healthcare Online: Experiences of Care Providers and Families who ‘Blog" Scottish Patient Safety Paediatric Programme
OCHSPS Patient Safety Crosswalk (Canadian Patient Safety Institute CPSI ICSP) Through the Eyes of the Workforce: Creating Joy, Meaning, and Safer Health Care Lucian Leape Institute NPSF WHO: Exploring patient participation in
reducing health-care-related safety risks Patient Driven Care AAP Supporting the Family After the Death of a Child Children's Hospital Association American Academy of Pediatrics Med-Peds NICHQ WHO Patient Safety Atul Gawande publications and checklists Points from Pronovost Blog Premier Safety Share: Did you see these fifteen safety tools?
Vanderbilt ICU Delirium and Cognitive Impairment Study Group Society for Participatory Medicine NY Times Health and Wellness- Well blog Better health IT design crucial to improving patient safety Educate the Young Not Running a Hospital Blog Healing Hospitals Blog Wachter's World Blog KevinMD Blog PSNET Patient Safety Primer Error Disclosure (AHRQ) AHRQ Patient Safety Network AHRQ Getting Safer Care AHRQ M&M: Duty to Disclose Someone Else's Error? BMJ-Leadership for safety: industrial experience National Association for Healthcare Quality CPHQ Certification Remaking American Medicine: Hand and Hand Considerations in the Disclosure of Serious Clinical Adverse Events Patient & Family Centered Care partners (PFCC)
Advanced Hernia Solutions Person-Centered Care Patients Right to Know Splashes of Hope HUSH Music Foundation VA Patient Safety for Patients Family Voices (support parent) Bridging People and Places Writing to Heal: A guided journal for recovering from trauma & emotional upheaval Tear Soup (for children also) Engage With Grace Sepsis Alliance Foundation Surviving Sepsis Campaign Martine Echrenclou and The Take-Charge Patient Welcome to the Walking Gallery by Regina Holliday (Our story is on jacket #102) The Tale of Two Justins-Embracing Failure by Regina Holliday, "But Dale Ann will continue her journey so others shall not suffer. She will work with providers to help them embrace the lessons of failure and share the healing power of knowledge with others." The Grief Toolbox Josie King Foundation The Empowered Patient Coalition Medically Induced Trauma Support Services (MITSS)
Alliance for Safety Awareness for Patients *NEW SURVEY: Partnerships with parents/families and pediatricians to safeguard children and save lives! Click here to take survey Survey: Emotional/Physical Impact Following Child's Death and A Heart of Healing (Research) Justin's Life on Vimeo
OUR AFFILIATIONS, SUPPORTERS AND PARTNERS IN CARE:
The Task Force for Global Health Projects Compassionate Friends Grief Support Resources
IHI Open School for health professions (Chapter speaker) PIPSQC: Pediatric International Patient Safety and Quality Community (IHI Co-presenter & faculty)
One and Only Safe Injection Practices Campaign NY Pilot Site (Work group member and patient safety advisor)
Hearts in Healthcare Dale Ann Micalizzi