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New: Patient- and Family-Centered Care and the Pediatrician's Role »

From the American Academy of Pediatrics 

ABSTRACT:

Drawing on several decades of work with families, pediatricians, other health care professionals, and policy makers, the American Academy of Pediatrics provides a definition of patient- and family-centered care. In pediatrics, patient- and family-centered care is based on the understanding that the family is the child’s primary source of strength and support. Further, this approach to care recognizes that the perspectives and information provided by families, children, and young adults are essential components of high-quality clinical decision-making, and that patients and family are integral partners with the health care team. This policy statement outlines the core principles of patient- and family-centered care, summarizes some of the recent literature linking patient- and family-centered care to improved health outcomes, and lists various other benefits to be expected when engaging in patient- and family-centered pediatric practice. The statement concludes with specific recommendations for how pediatricians can integrate patient- and family-centered care in hospitals, clinics, and community settings, and in broader systems of care, as well.

(Read more by clicking on title)

3 months ago

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Justin's HOPE healthcare blog

Justin's HOPE healthcare blog

Justin's HOPE Project at The Task Force For Global Health

CONTACT INFO: Dale Ann Micalizzi Founder/Director of Justin's HOPE Project at the Task Force for Global Health (Child Survival and Development.) Healthcare advocacy and education in loving memory of our precious child. Collaborations, speaking requests and comments to: micalizzidag@aol.com

"Dearest Dale, All over the world, your love for Justin burns brightly and fills hearts and lives with hope for a safer future. Our thoughts and love are with you. Arohanui." ~ Marie Bismark MD, JD

"I cannot fathom walking a mile in your shoes, but the emotional intensity for me was as real as it was when we first met – and that my friend is you delivering such a heart-felt story!." ~Maureen McKee NJ Council Teaching/Children's Hospitals

Our Recent Health Education Projects:

Author to an issue of Pediatric Clinics of North America on Patient Safety (Summer 2012)

What happens when things go wrong? (Pediatric Anesthesia 2011)

Our PIPSQC Faculty Presentations "Making Health Care Safer for Children."

Informed choice: The meeting point of law, medicine, and person-centred care

RCA: Engaging Patients and Families in Root Cause Analysis of Sentinel Health Care Events 2012


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Justin's HOPE Project will focus on Healthcare Openness, Professionalism and Excellence via education, research and reform. Our vision is to promote quality, safe, compassionate, patient and family centered healthcare. Thank you for visiting and for helping us save lives together!

Justin's HOPE Project Annual Report/ 501 (c) (3) tax-exempt organization

The letter that took me ten years to write

Join our Facebook Group: Compassion in Healthcare-The Heart of Healing (Creator)

My 2011 IHI Forum Presentation

A Heart of Healing-family perspective research

*Now accepting essays-Apply for Justin's 2012 Institute for Healthcare Improvement Forum Scholarships!

Justin's HOPE IHI Forum SCHOLARSHIP WINNERS: Nora Dackiewicz, Rachel Wang, Kelly B. Garrison, Paul Trani, Carolyn Phelps Kergosien, Munashe Kaseke, Acklema Mohammad, Kelly O’Connor, Thomas Spain, Margaret Coit, Tamara Bavousett, Meredith Perry and Lori Montagna. I am extremely proud of this project and of these healthcare providers!

"‘You and your story are such an inspiration to me to continue to work to truly improve the field of health care. IHI is such a wealth of information an educational opportunity, but as a graduate student, I have been worried about how I would be able to afford attending the forum. It would be an absolute pleasure to be able to be there with you.” ~A scholarship beneficiary

Donations warmly appreciated to Justin's HOPE Project 325 Swanton Way, Decatur, Georgia 30030 (or click here)

IHI 24th National Forum-Please join us!

#ptsafety #transparency #pediatrics #medicine #medethics #meded #hcsm #hcr #healthinnovations #hospital #law #disclosure #compassion #children #nurse #pharmacist #physician #medstudent

Health Education Resources to help you save lives from harm, to educate and to heal:

A Mother’s Journey Through a Health Care System that was Meant to Comfort and Heal (IHI)

A Family's Search for Truth (PSQH)

The aftermath of a never event (Modern Heathcare Commentary)

BMJ-Leadership for safety: industrial experience

National Association for Healthcare Quality CPHQ Certification

Remaking American Medicine: Hand and Hand

Patient Family Anesthesia Check List (MHAUS Board Member)

The power of apology (New Zealand Medical Journal)

Realising the research power of complaints data (NZMA)

Remedies sought and obtained in healthcare complaints BMJ

From tragedy to advocacy (Modern Healthcare)

Respectful Management of Serious Clinical Adverse Events (IHI Partner/Advisor)

Integrated Accountability & Collaborative Transparency Program IACT (Co-Presenter IHI Forum 2012)

Patient & Family Centered Care partners (PFCC)

PSNET Patient Safety Primer Error Disclosure (AHRQ)

HHS Partnership for Patients (Partner)

AHRQ M&M: Duty to Disclose Someone Else's Error?

Welcome to the Walking Gallery by Regina Holliday (I am jacket #102)

The Grief Toolbox

Medically Induced Trauma Support Services (MITSS)

*NEW SURVEY: Partnerships with parents/families and pediatricians to safeguard children and save lives! Click here to take survey

Survey: Emotional/Physical Impact Following Child's Death and A Heart of Healing (Research)

Justin's Life on Vimeo

My affiliations, supporters and partners in care:

Compassionate Friends Grief Support Resources (Co-chapter leader)

IHI Open School for health professions (Chapter speaker)

PIPSQC: Pediatric International Patient Safety and Quality Community (IHI Co-presenter & faculty)

Partnership for Patients - Healthcare.gov. Proud to be Partners in Better Care at Lower Costs

Please sign the pledge and join the partnership!

One and Only Safe Injection Practices Campaign NY Pilot Site (Work group member and patient safety advisor)

 Medscape Education: Free CME Courses (SIPC Partner)

MHAUS - Malignant Hyperthermia Association of the United States

(MHAUS Board Member)

Dale Ann Micalizzi

Presentations, Interviews and Partnerships: Yale Medical School, Institute for Healthcare Improvement, NRC+Picker keynote and webinar, NJ Council of Teaching/Children's Hospitals, PSQH Magazine, Institute for Patient- and Family-Centered Care, LA County Health Dept., Southwestern Vermont Medical Center, Health Mgt. Associates (Presenter for C-Suite & Faculty), CBC Radio, Modern Healthcare Magazine, Pediatric Anesthesia, Newsweek, Forbes, Time, "Dead By Mistake" Series, Wall Street Journal, Harpo Productions, Medscape, New Zealand Medical Journal, ASA Closed Claims Project, Remaking American Medicine Documentary, Josie's Story, Chicago Tribune, Albany Times Union, Schenectady Gazette, Slate Magazine, Joint Commission Resources, IHI Open School at SUNY Albany School of Public Health & Texas Tech, World Health Organization Patient Safety Champion, MHAUS Scientific Conference "Patient Safety First" and Board Member, Loma Linda School of Medicine Simulation Center keynote, NYS School of Public Health/Dept. of Health One and Only Campaign Partner-SIPC, PIPSQC, ACES ORLC, Co-Chair 2011 IHI National Forum, Consumer Health Coalition Speaker Series Carlow University 2011. Northeast Hospitals IHI Open School Chapter affiliated with Endicott College, North Shore Community College and Salem State University in Massachusetts Jan. 2012. NJHA Partnership for Patients Medication Safety Conference May 2012. Saint Barnabas Medical Center New Resident Orientation Aug. 2012

“Dale is an inspired speaker and organizer advocating for the interests of patients in health care systems. She first inspired me by her presence and telling of her story at a national meeting of the Institute for Health Care Improvement. Following that meeting she became a valued resource in helping our health system design and implement full disclosure policies that truly meet patient and family needs at the time of disclosing errors and harm. Her integrity, poise, and core commitment help keep this health care executive thinking about the 'right stuff''. I am forever grateful to her.” ~Dr. Mark Novotny, Chief Medical Officer

"Dale is a nationally recognized champion of patient safety. If there is one person who embodies the resilience of the human spirit and the transformation of a personal tragedy into a powerful force for health care improvement, it would be her. She is both tireless and inspiring in her mission, building bridges of communication between patients, families, and healthcare providers through her work with Justin’s Hope. I am proud to call her a mentor, a colleague, and a friend." ~Tricia Pil MD, Pediatrician

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