Justin's HOPE healthcare blog
Justin's HOPE Project at The Task Force For Global Health
CONTACT INFO: Dale Ann Micalizzi Founder/Director of Justin's HOPE Project at the Task Force for Global Health (Child Survival and Development.) The vision for this project is to promote quality, safe, compassionate, patient and family centered healthcare and resolution of issues around medical errors through full disclosure.
Healthcare advocacy and education in loving memory of our precious child, Justin, who died at the age of 11 following a "simple" ankle procedure. Healthcare improvement collaborations, interviews, partnerships, speaking requests and comments welcome. Email to:
*Many thanks to our sponsors, donors and supporters who help us save childrens' lives!
"Dearest Dale, All over the world, your love for Justin burns brightly and fills hearts and lives with hope for a safer future. Our thoughts and love are with you. Arohanui." ~ Marie Bismark
Patient & family advisors work in a variety of healthcare settings sharing their personal stories to represent all patients & families in providing an educated perspective of care by bringing authenticity, empowerment, respect and inspiration to the design and delivery of healthcare systems. Patient & Family Advisor roles include partner, educator, speaker, listener, advocate, collaborator and leader, ensuring the focus of healthcare is centered on the patient & the family.
*Collaboratively written by the patient & family advisors in attendance at the IHI Forum, 2012
OUR RECENT HEALTH EDUCATION PROJECTS:
PIPSQC Ambassadors and PIPSQC Speakers
Our chapter in Pediatric Clinics of North America, The Heart of Health Care: Parents' Perspectives on Patient Safety
NY One&Only Safe Injection Practices work group patient safety advisor
My Grand Rounds Presentation at Arkansas Children's Hospital 2012
Leadership Response to a Sentinel Event: Respectful, Effective Crisis Management #IHI
What happens when things go wrong? (Pediatric Anesthesia 2011) Our PIPSQC Faculty Presentations "Making Health Care Safer for Children."
PIPSQC Forum Faculty and Pediatric Patient Safety Ambassador
Informed choice: The meeting point of law,
medicine, and person-centred care
Checklists to Improve Patient Safety June 2013
The Beryl Institute: Improving the Patient Experience. The Beryl Institute Global Patient & Family Advisory Council
CMS Partnership for Patients HEN advisor
RCA: Engaging Patients and Families in Root Cause Analysis of Sentinel Health Care Events 2012 and PSQH: The Story of Justin Micalizzi
Improving Health Care Quality by Don Berwick
Respectful Management of Serious Clinical Adverse Events (IHI Partner/Advisor)Considerations in the Disclosure of Serious Clinical Adverse Events
The letter that took me ten years to write
Justin's last 6th grade photo (2001)
Justin's HOPE Project will focus on Healthcare Openness, Professionalism and Excellence via education, research and reform. Thank you for believing in our mission at Justin’s HOPE Project!
Justin's HOPE is a Task Force for Global Health Project!
Justin's HOPE Project Annual Report/ 501 (c) (3) tax-exempt organization
Join our Facebook Group: Compassion in Healthcare-The Heart of Healing (Creator)
My 2011 IHI Forum Presentation
IHI Forum Co-chair Dale Ann Micalizzi and Dr. Don Berwick at the IHI Faculty Reception 2011
HEALTHCARE SCHOLARSHIP OPPORTUNITY: Apply for Justin's 2013 Institute for Healthcare Improvement National Forum Scholarships-2013 application is now available!
Join us at the 25th IHI National Forum 2013!
The Power of HOPE in Heathcare
JUSTIN MICALIZZI INSTITUTE FOR HEALTHCARE IMPROVEMENT (IHI) NATIONAL FORUM SCHOLARSHIP WINNERS:
2012-Lesley Thembelani Bhebhe, Chris Espersen and Anita Gupta.
2011- Nora Dackiewicz, Rachel Wang andKelly B. Garrison.
2010- Paul Trani, Carolyn Phelps Kergosien, Munashe Kaseke and Acklema Mohammad.
2009- Kelly O’Connor,
Thomas Spain and Margaret Coit.
2008- Tamara Bavousett, Meredith Perry and Lori Montagna.
After 4 days of non-stop learning labs, mini courses and conferences we always save time to celebrate the knowledge that we've gained, the work that we've accomplished and the lives that we've saved by being a part of this project!
Justin's 2012 IHI Scholarship celebration dinner!
Justin's 2011 IHI Scholarship celebration dinner!
Justin's 2010 IHI Scholarship celebration dinner!
Justin's 2008 First IHI Scholarship celebration dinner!
I am extremely proud of this project and of these amazing healthcare providers who have, and will continue to make a difference!
"You and your story are such an inspiration to me to continue to work to truly improve the field of health care. IHI is such a wealth of information an educational opportunity, but as a graduate student, I have been worried about how I would be able to afford attending the forum. It would be an absolute pleasure to be able to be there with you.” ~A Scholarship beneficiary
Justin's graduating class at Schalmont High School Rotterdam, NY, also received 34 college scholarships in Justin's memory.
DONATIONS warmly appreciated to Justin's HOPE Project at The Task Force for Global Health 325 Swanton Way, Decatur, Georgia 30030 (or click here)
GE will match their employees' donations to Justin's HOPE Project!
Our Story Told
A Mother’s Journey Through a Health
Care System that was Meant to
Comfort and Heal (IHI)
A Family's Search for Truth (PSQH) The aftermath of a never event (Modern Heathcare Commentary) Learning to listen: parents speak out at IHI Forum. (The Health Foundation)From tragedy to advocacy by Jean DerGurahian (Modern Healthcare)A Heart of Healing When things go wrong in care-The family perspective (The Task Force-Global Health Promise)PCSI-ICSP Harm to Healing – Partnering with
Patients Who Have Been Harmed
Patient Family Anesthesia Check List and MHAUS Board Member
Realising the research power of complaints data (NZMA)Remedies sought and obtained in healthcare complaints BMJ
HEALTH EDUCATION RESOURCES to help you save lives from harm, to educate and to heal:
IHI Patient Safety/Quality Resources Online Learning
WHO London Declaration
Achieving a safe culture: theory and practice by J. Reason
Personalizing Healthcare Online: Experiences of Care Providers and Families who ‘Blog"
Scottish Patient Safety Paediatric Programme
Patient Safety Crosswalk (Canadian Patient Safety Institute CPSI ICSP)
Through the Eyes of the Workforce: Creating Joy, Meaning, and Safer Health Care Lucian Leape Institute NPSF
WHO: Exploring patient participation in
reducing health-care-related safety risks
Patient Driven Care
AAP Supporting the Family After the Death of a Child
Children's Hospital Association
American Academy of Pediatrics Med-Peds
WHO Patient Safety
Atul Gawande publications and checklists
Points from Pronovost Blog
Premier Safety Share: Did you see these fifteen safety tools?
Vanderbilt ICU Delirium and Cognitive Impairment Study Group
Society for Participatory Medicine
Better health IT design crucial to improving patient safety
Educate the Young
Not Running a Hospital Blog
Healing Hospitals Blog
Wachter's World Blog
PSNET Patient Safety Primer Error Disclosure (AHRQ) AHRQ Patient Safety Network
AHRQ Getting Safer CareAHRQ M&M: Duty to Disclose Someone Else's Error?BMJ-Leadership for safety: industrial experience National Association for Healthcare Quality CPHQ CertificationRemaking American Medicine: Hand and Hand Considerations in the Disclosure of Serious Clinical Adverse Events
Patient & Family Centered Care partners (PFCC)
Advanced Hernia Solutions Person-Centered Care
Patients Right to Know
Splashes of Hope
HUSH Music Foundation
VA Patient Safety for Patients
Family Voices (support parent)
Bridging People and Places
Writing to Heal: A guided journal for recovering from trauma & emotional upheaval
Tear Soup (for children also)
Engage With Grace
Sepsis Alliance Foundation
Surviving Sepsis Campaign
Martine Echrenclou and The Take-Charge Patient
Welcome to the Walking Gallery by Regina Holliday (I am jacket #102)
The Tale of Two Justins-Embracing Failure by Regina Holliday, "But Dale Ann will continue her journey so others shall not suffer. She will work with providers to help them embrace the lessons of failure and share the healing power of knowledge with others."
The Grief Toolbox
Josie King Foundation
The Empowered Patient Coalition
Medically Induced Trauma Support Services (MITSS)
Alliance for Safety Awareness for Patients
*NEW SURVEY: Partnerships with parents/families and pediatricians to safeguard children and save lives! Click here to take survey
Survey: Emotional/Physical Impact Following Child's Death and A Heart of Healing (Research)
Justin's Life on Vimeo
TAGS: #ptsafety #transparency #pediatrics #medicine #medethics #meded #hcsm #hcr #health innovations #hospital #law #disclosure #compassion #children #nurse #pharmacist #physician #medstudent #honest communication #mindfulness #teamwork #IHI #human factors
OUR AFFILIATIONS, SUPPORTERS AND PARTNERS IN CARE:
The Task Force for Global Health Projects
Compassionate Friends Grief Support Resources
IHI Open School for health professions (Chapter speaker)
PIPSQC: Pediatric International Patient Safety and Quality Community (IHI Co-presenter & faculty)
One and Only Safe Injection Practices Campaign NY Pilot Site (Work group member and patient safety advisor)
Hearts in Healthcare
MHAUS - Malignant Hyperthermia Association of the United States
(MHAUS Board Member)
Dale Ann Micalizzi
KEYNOTES, PRESENTATIONS AND INTERVIEWS:
Yale Medical School,
Institute for Healthcare Improvement,
NRC+Picker keynote and webinar,
NJ Council of Teaching/Children's Hospitals, PSQH Magazine, Institute for Patient- and Family-Centered Care,
LA County Health Dept.,
Southwestern Vermont Medical Center,
Health Mgt. Associates (Presenter for C-Suite & Faculty),
Modern Healthcare Magazine,
Newsweek, Forbes, Time, "Dead By Mistake" Series, Wall Street Journal, Harpo Productions, Medscape, New Zealand Medical Journal, ASA Closed Claims Project, Remaking American Medicine Documentary, Josie's Story, Chicago Tribune, Albany Times Union, Schenectady Gazette, Slate Magazine, Joint Commission Resources,
IHI Open School at SUNY Albany School of Public Health & Texas Tech,
World Health Organization Patient Safety Champion,
MHAUS Scientific Conference "Patient Safety First" and Board Member,
Loma Linda School of Medicine Simulation Center keynote,
NYS School of Public Health/Dept. of Health One and Only Campaign Partner-SIPC, PIPSQC, ACES ORLC,
Co-Chair 2011 IHI National Forum,
Consumer Health Coalition Speaker Series Carlow University 2011. Northeast Hospitals IHI Open School Chapter affiliated with Endicott College, North Shore Community College and Salem State University in Massachusetts Jan. 2012. NJHA Partnership for Patients Medication Safety Conference May 2012. Saint Barnabas NJ Medical Center New Resident Orientation and Daytona Halifax Health General Surgery Residency Program Grand Rounds presentation-Transformative Care Institute Aug. 2012. Arkansas Children's Hospital Grand Rounds presentation Oct. 2012. IHI Forum faculty presenter and Patient & Family Advisor Dec. 2012. The Beryl Institute Global Patient and Family Advisory Council, PIPSQC Ambassador Lead and faculty, Commentary for new hearlthcare books, CMS Partnership for Patients Procedureal Harm HEN, Promising Care by Don Berwick commentary, Justin's HOPE Project video 2013.
“Dale is an inspired speaker and organizer advocating for the interests of patients in health care systems. She first inspired me by her presence and telling of her story at a national meeting of the Institute for Health Care Improvement. Following that meeting she became a valued resource in helping our health system design and implement full disclosure policies that truly meet patient and family needs at the time of disclosing errors and harm. Her integrity, poise, and core commitment help keep this health care executive thinking about the 'right stuff''. I am forever grateful to her.” ~Dr. Mark Novotny, Chief Medical Officer
"Dale is a nationally recognized champion of patient safety. If there is one person who embodies the resilience of the human spirit and the transformation of a personal tragedy into a powerful force for health care improvement, it would be her. She is both tireless and inspiring in her mission, building bridges of communication between patients, families, and healthcare providers through her work with Justin’s Hope. I am proud to call her a mentor, a colleague, and a friend."
~Tricia Pil MD, Pediatrician
"Dale should speak to all who provide direct care, she was amazing."~NJHA Partnership for Patients Medication Safety conference attendee
"I cannot fathom walking a mile in your shoes, but the emotional intensity for me was as real as it was when we first met – and that my friend is you delivering such a heart-felt story!." ~Maureen McKee NJ Council Teaching/Children's Hospitals