Justin's HOPE healthcare blog
Justin's HOPE Project at The Task Force For Global Health
CONTACT INFO: Dale Ann Micalizzi Founder/Director of Justin's HOPE Project at the Task Force for Global Health (Child Survival and Development.) The vision for this project is to promote quality, safe, compassionate, patient and family centered healthcare and resolution of issues around medical errors through full disclosure.
Healthcare advocacy and education in loving memory of our precious child, Justin, who died at the age of 11 following a "simple" ankle procedure. Healthcare improvement collaborations, interviews, partnerships, speaking requests and comments welcome. Email to:
Heartfelt gratitude to our sponsors, donors and supporters who help us educate and save childrens lives!
DONATIONS warmly appreciated to Justin's HOPE Project at The Task Force for Global Health 325 Swanton Way, Decatur, Georgia 30030 (or click here) A 501 (c) (3) tax-exempt organization. Amazon Smile-Donate to The Task Force for Global Health (Justin's HOPE Project )as your charity when ordering from Amazon GE will match their employees' donations to Justin's HOPE Project at The Task Force for Global Health. Thank you GE!
"Dearest Dale, All over the world, your love for Justin burns brightly and fills hearts and lives with hope for a safer future. Our thoughts and love are with you. Arohanui." ~ Marie Bismark
OUR RECENT HEALTH EDUCATION PROJECTS:
NEW Justin's HOPE Project video to share with your staff and medical students. *Thanks to filmworks109 for their professionalism and excellence!
New Survey Initiative to Improve Pediatric Patient Safety Internationally! Please complete and share. PFPSC Safety Net Newsletter, "Bridging People and Places in Pediatrics" CPSI-ICSP 2014. My commentary included in Don Berwick's new book, Promising Care: How We Can Rescue Health Care by Improving It.
PIPSQC Ambassadors and PIPSQC Speakers Dr. Marie Bismark and Dale Ann Micalizzi's chapter in Pediatric Clinics of North America, The Heart of Health Care: Parents' Perspectives on Patient Safety I-PASS Better Handoffs, Safer Care partner NY One&Only Safe Injection Practices work group patient safety advisor
My Grand Rounds Presentation at Arkansas Children's Hospital 2012 IHI Forum Faculty Leadership Response to a Sentinel Event: Respectful, Effective Crisis Management #IHI What happens when things go wrong? (Pediatric Anesthesia 2011)
Informed choice: The meeting point of law,
medicine, and person-centred care Checklists to Improve Patient Safety June 2013 The Beryl Institute: Improving the Patient Experience. The Beryl Institute Global Patient & Family Advisory Council CMS Partnership for Patients HEN advisor RCA: Engaging Patients and Families in Root Cause Analysis of Sentinel Health Care Events 2012 and PSQH: The Story of Justin Micalizzi Improving Health Care Quality by Don Berwick Respectful Management of Serious Clinical Adverse Events (IHI Partner/Advisor) Considerations in the Disclosure of Serious Clinical Adverse Events The letter that took me ten years to write
Justin's last 6th grade photo (2001)
Justin's HOPE Project will focus on Healthcare Openness, Professionalism and Excellence via education, research and reform. Thank you for believing in our mission at Justin’s HOPE Project!
Justin's HOPE is a Task Force for Global Health Project!
Justin's HOPE Project Annual Report/ 501 (c) (3) tax-exempt organization Join our Facebook Group: Compassion in Healthcare-The Heart of Healing (Creator)
Patient & family advisors work in a variety of healthcare settings sharing their personal stories to represent all patients & families in providing an educated perspective of care by bringing authenticity, empowerment, respect and inspiration to the design and delivery of healthcare systems. Patient & Family Advisor roles include partner, educator, speaker, listener, advocate, collaborator and leader, ensuring the focus of healthcare is centered on the patient & the family.
*Collaboratively written by the patient & family advisors in attendance at the IHI Forum, 2012
Our PIPSQC Faculty Presentations "Making Health Care Safer for Children."
PIPSQC Forum Faculty
My 2011 IHI Forum Presentation Our PIPSQC Faculty at the 2013 IHI Forum presenting mini course on "Protecting Children from Harm" are Jonny, Peter, Matt, Dale & Vieve
IHI Forum Co-chair Dale Ann Micalizzi and Dr. Don Berwick at the IHI Faculty Reception 2011
HEALTHCARE SCHOLARSHIP OPPORTUNITY: Apply for Justin's 2014 Institute for Healthcare Improvement National Forum Scholarships-application available in June 2014 (funds permitting)
The Power of HOPE in Heathcare
Please meet our JUSTIN MICALIZZI INSTITUTE FOR HEALTHCARE IMPROVEMENT #IHI NATIONAL FORUM SCHOLARSHIP WINNERS:
2013-Crystal Loucel, Cody Mullen and Kim Ferguson.
2012-Lesley Thembelani Bhebhe, Chris Espersen and Anita Gupta.
2011- Nora Dackiewicz, Rachel Wang and Kelly B. Garrison.
2010- Paul Trani, Carolyn Phelps Kergosien, Munashe Kaseke and Acklema Mohammad.
2009- Kelly O’Connor,
Thomas Spain and Margaret Coit.
2008- Tamara Bavousett, Meredith Perry and Lori Montagna.
After 4 days of non-stop learning labs, mini courses and conferences we always save time to celebrate the knowledge that we've gained, the work that we've accomplished and the lives that we've saved by being a part of this project!
Justin's 2013 IHI Scholarship celebration dinner! Justin's 2012 IHI Scholarship celebration dinner! Justin's 2011 IHI Scholarship celebration dinner with project supporter Dr. Bruce Ramshaw! Justin's 2010 IHI Scholarship celebration dinner with project supporters Drs. JoEllen Koerner and Tricia Pil!
Justin's 2008-2010 IHI Scholarship winners
I am extremely proud of this project and of these amazing healthcare providers who have, and will continue to make a difference!
"You and your story are such an inspiration to me to continue to work to truly improve the field of health care. IHI is such a wealth of information an educational opportunity, but as a graduate student, I have been worried about how I would be able to afford attending the forum. It would be an absolute pleasure to be able to be there with you.” ~A Scholarship beneficiary
Justin's graduating class at Schalmont High School Rotterdam, NY, also received 34 college scholarships in Justin's memory.
Our Story Told
A Mother’s Journey Through a Health
Care System that was Meant to
Comfort and Heal (IHI) A Family's Search for Truth (PSQH) The aftermath of a never event (Modern Heathcare Commentary) Learning to listen: parents speak out at IHI Forum. (The Health Foundation) From tragedy to advocacy by Jean DerGurahian (Modern Healthcare)A Heart of Healing When things go wrong in care-The family perspective (The Task Force-Global Health Promise) PCSI-ICSP Harm to Healing – Partnering with
Patients Who Have Been Harmed Patient Family Anesthesia Check List and MHAUS Board Member
Realising the research power of complaints data (NZMA) Remedies sought and obtained in healthcare complaints BMJ
HEALTH EDUCATION RESOURCES to help you save lives from harm, to educate and to heal:
IHI Patient Safety/Quality Resources Online Learning WHO London Declaration Achieving a safe culture: theory and practice by J. Reason Personalizing Healthcare Online: Experiences of Care Providers and Families who ‘Blog" Scottish Patient Safety Paediatric Programme
OCHSPS Patient Safety Crosswalk (Canadian Patient Safety Institute CPSI ICSP) Through the Eyes of the Workforce: Creating Joy, Meaning, and Safer Health Care Lucian Leape Institute NPSF WHO: Exploring patient participation in
reducing health-care-related safety risks Patient Driven Care AAP Supporting the Family After the Death of a Child Children's Hospital Association American Academy of Pediatrics Med-Peds NICHQ WHO Patient Safety Atul Gawande publications and checklists Points from Pronovost Blog Premier Safety Share: Did you see these fifteen safety tools?
Vanderbilt ICU Delirium and Cognitive Impairment Study Group Society for Participatory Medicine Better health IT design crucial to improving patient safety Educate the Young Not Running a Hospital Blog Healing Hospitals Blog Wachter's World Blog KevinMD Blog PSNET Patient Safety Primer Error Disclosure (AHRQ) AHRQ Patient Safety Network AHRQ Getting Safer Care AHRQ M&M: Duty to Disclose Someone Else's Error? BMJ-Leadership for safety: industrial experience National Association for Healthcare Quality CPHQ Certification Remaking American Medicine: Hand and Hand Considerations in the Disclosure of Serious Clinical Adverse Events Patient & Family Centered Care partners (PFCC)
Advanced Hernia Solutions Person-Centered Care Patients Right to Know Splashes of Hope HUSH Music Foundation VA Patient Safety for Patients Family Voices (support parent) Bridging People and Places Writing to Heal: A guided journal for recovering from trauma & emotional upheaval Tear Soup (for children also) Engage With Grace Sepsis Alliance Foundation Surviving Sepsis Campaign Martine Echrenclou and The Take-Charge Patient Welcome to the Walking Gallery by Regina Holliday (I am jacket #102) The Tale of Two Justins-Embracing Failure by Regina Holliday, "But Dale Ann will continue her journey so others shall not suffer. She will work with providers to help them embrace the lessons of failure and share the healing power of knowledge with others." The Grief Toolbox Josie King Foundation The Empowered Patient Coalition Medically Induced Trauma Support Services (MITSS)
Alliance for Safety Awareness for Patients *NEW SURVEY: Partnerships with parents/families and pediatricians to safeguard children and save lives! Click here to take survey Survey: Emotional/Physical Impact Following Child's Death and A Heart of Healing (Research) Justin's Life on Vimeo
OUR AFFILIATIONS, SUPPORTERS AND PARTNERS IN CARE:
The Task Force for Global Health Projects Compassionate Friends Grief Support Resources
IHI Open School for health professions (Chapter speaker) PIPSQC: Pediatric International Patient Safety and Quality Community (IHI Co-presenter & faculty)
One and Only Safe Injection Practices Campaign NY Pilot Site (Work group member and patient safety advisor)
Hearts in Healthcare Dale Ann Micalizzi
KEYNOTES, PRESENTATIONS AND INTERVIEWS:
Yale Medical School,
Institute for Healthcare Improvement,
NRC+Picker keynote and webinar,
NJ Council of Teaching/Children's Hospitals, PSQH Magazine, Institute for Patient- and Family-Centered Care,
LA County Health Dept.,
Southwestern Vermont Medical Center,
Health Mgt. Associates (Presenter for C-Suite & Faculty),
Modern Healthcare Magazine,
Newsweek, Forbes, Time, "Dead By Mistake" Series, Wall Street Journal, Harpo Productions, Medscape, New Zealand Medical Journal, ASA Closed Claims Project, Remaking American Medicine Documentary, Josie's Story, Chicago Tribune, Albany Times Union, Schenectady Gazette, Slate Magazine, Joint Commission Resources,
IHI Open School at SUNY Albany School of Public Health & Texas Tech,
World Health Organization Patient Safety Champion,
MHAUS Scientific Conference "Patient Safety First" and Board Member,
Loma Linda School of Medicine Simulation Center keynote,
NYS School of Public Health/Dept. of Health One and Only Campaign Partner-SIPC, PIPSQC, ACES ORLC,
Co-Chair 2011 IHI National Forum,
Consumer Health Coalition Speaker Series Carlow University 2011. Northeast Hospitals IHI Open School Chapter affiliated with Endicott College, North Shore Community College and Salem State University in Massachusetts Jan. 2012. NJHA Partnership for Patients Medication Safety Conference May 2012. Saint Barnabas NJ Medical Center New Resident Orientation and Daytona Halifax Health General Surgery Residency Program Grand Rounds presentation-Transformative Care Institute Aug. 2012. Arkansas Children's Hospital Grand Rounds presentation Oct. 2012. IHI Forum faculty presenter and Patient & Family Advisor Dec. 2012. The Beryl Institute Global Patient and Family Advisory Council, PIPSQC Ambassador Lead and faculty, Commentary for new hearlthcare books, CMS Partnership for Patients Procedural Harm HEN, Promising Care by Don Berwick commentary, Justin's HOPE Project video and IHI Forum PIPSQC Presenter 2013. Contributor to CPSI-ICSP Patient Safety Net Newsletter "Bridging People and Places in Pediatrics" 2014.
“Dale is an inspired speaker and organizer advocating for the interests of patients in health care systems. She first inspired me by her presence and telling of her story at a national meeting of the Institute for Health Care Improvement. Following that meeting she became a valued resource in helping our health system design and implement full disclosure policies that truly meet patient and family needs at the time of disclosing errors and harm. Her integrity, poise, and core commitment help keep this health care executive thinking about the 'right stuff''. I am forever grateful to her.” ~Dr. Mark Novotny, Chief Medical Officer
"Dale is a nationally recognized champion of patient safety. If there is one person who embodies the resilience of the human spirit and the transformation of a personal tragedy into a powerful force for health care improvement, it would be her. She is both tireless and inspiring in her mission, building bridges of communication between patients, families, and healthcare providers through her work with Justin’s Hope. I am proud to call her a mentor, a colleague, and a friend."
~Tricia Pil MD, Pediatrician
"Dale should speak to all who provide direct care, she was amazing."~NJHA Partnership for Patients Medication Safety conference attendee
"I cannot fathom walking a mile in your shoes, but the emotional intensity for me was as real as it was when we first met – and that my friend is you delivering such a heart-felt story!." ~Maureen McKee NJ Council Teaching/Children's Hospitals